RNS Implant Activated


So my question to you regarding the RNS surgery, “was it worth it?”, is still a mystery.  After the implant was activated a month ago, my seizures automatically reduced in frequency.  Unfortunately that lasted 2 weeks and now I’m worse than I was before the surgery.  I’m having many auras each day (originally I’d have approximately 1 on a seizure day and now around 10 each day), and seizures almost every day of the week.  Because of this I went back to my doctor who is wondering if the device is in the right spot.  What?  After that surgery, it’s possible it was put in the wrong area?  Please say no to that, because just a month later I’m starting to regret this decision.  I realize it takes a lot of time to alter the device, but the look on my doctors face when looking at my results scared the hell out of me!  Any other RNS patients who’ve dealt with the same thing?

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I’ve been dealing with Epilepsy for approximately 20 years (since my 20’s) but recently had the RNS Responsive Neurostimulation implant and have high hopes!

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