RNS Implant Surgery

Last month, April 2018, I had epilepsy surgery.  My seizures are focused in my occipital lobe (the area which affects vision), which is a rare location for epilepsy and potentially dangerous for surgical resection (where they remove a part of the brain).   My doctor suggested that instead of resection, they would try to implant the RNS device.  He gave me an approximate 50% chance that they would even be able to find a safe place to insert it.  The idea of brain surgery alone scared me but with only a 50% chance they’d be able to do ANYthing drove me nuts!

The first surgery involved inserting the intracranial electrodes on my scull for brain mapping.  My doctors said that I had more electrodes inserted than almost all other surgeries they had done.  I was miserable.  I couldn’t eat, drink, talk, watch tv, read.  For 7 days I laid in bed without moving.  Due to potential seizures, I was restrained on the bed with my wrists tied down.

Thankfully, enough information was obtained from my mapping which gave the doctors confidence in a safe location for my implant.  During the second surgery, the grids were removed and the RNS was implanted.  Surprisingly, I recovered from the second surgery very well and was up, eating and talking very well within 24 hours.   I was in the hospital for approximately 10 days total and the first 7 were the worst.  Was it worth it?  We’ll have to see….

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I’ve been dealing with Epilepsy for approximately 20 years (since my 20’s) but recently had the RNS Responsive Neurostimulation implant and have high hopes!

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