Last month, April 2018, I had epilepsy surgery. My seizures are focused in my occipital lobe (the area which affects vision), which is a rare location for epilepsy and potentially dangerous for surgical resection (where they remove a part of the brain). My doctor suggested that instead of resection, they would try to implant the RNS device. He gave me an approximate 50% chance that they would even be able to find a safe place to insert it. The idea of brain surgery alone scared me but with only a 50% chance they’d be able to do ANYthing drove me nuts!
The first surgery involved inserting the intracranial electrodes on my scull for brain mapping. My doctors said that I had more electrodes inserted than almost all other surgeries they had done. I was miserable. I couldn’t eat, drink, talk, watch tv, read. For 7 days I laid in bed without moving. Due to potential seizures, I was restrained on the bed with my wrists tied down.
Thankfully, enough information was obtained from my mapping which gave the doctors confidence in a safe location for my implant. During the second surgery, the grids were removed and the RNS was implanted. Surprisingly, I recovered from the second surgery very well and was up, eating and talking very well within 24 hours. I was in the hospital for approximately 10 days total and the first 7 were the worst. Was it worth it? We’ll have to see….